Carrollton baby diagnosed with rare skin disease - WSFA.com Montgomery Alabama news.

Carrollton baby diagnosed with rare skin disease

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ATLANTA (CBS46) -

A Carrollton newborn has been diagnosed with a rare skin disease. 

The disease, epidermylosis bullosa, or E.B., causes the skin to blister and fall off. 

The baby, William Eli Burkhart, born Nov. 27, 2012 at Tanner Medical Center, was immediately taken to Children's Healthcare of Atlanta at Egelston, where he remains. 

Doctors are performing tests to determine the severity of the disease. 

Baby Eli's parents, Jessica Spicer and Randall Burkhart, were caught off guard by the disease, which is inherited. The couple told CBS Atlanta News they did not test for it. They hope others can learn from their story.

"If we had done it, [tested] we would have been more prepared for it," Burkhart said.

The couple will now have to purchase special items like clothes and a car seat that will help cut down on the blistering.

"It was really hard at first," Spicer said. "It still kind of makes me cry when I try to change the bandages and he cries, because I don't want to hurt him. But I'm getting better."

The couple said they are blessed to have the love and support of their family and church.

Spicer's parents, Kenneth and Teresa Spicer, were at the hospital when Eli was born. He is their 12th grandchild.

"I was just kind of speechless at first. I tried to contain myself and be strong for the kids because I knew they were afraid," Teresa Spicer said.

Eli's parents said he could be in the hospital for two weeks or two months depending what the tests reveal.

There is an account set up for the infant at Community Southern Bank in Bremen, GA, under the name 'Faith Full Gospel Youth Group For Baby Eli.'

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